Sunday, May 27, 2012

Not on the short bus yet

The therapy clinic/ daycare where Mae attended speech therapy three times a week suddenly decided they wanted to drop the therapy.  Thus we had about a month of time where Mae was not in therapy while they prepared the paperwork to have her seen elsewhere.  I feel as though the Lord was behind my trip to Little Rock this spring.  He knew this would happen so made sure I was prepared to help her myself with the instruction I got from my talented cousin Liz.  Our new clinic is nice.  It is a really friendly but busy place.  Unlike the previous clinic it is only a therapy clinic and the other children seem to fall into the heavily handicapped category.  I felt like the children at the last clinic seemed more affected by their poor socio-economic circumstances while the new children appear more physically disabled.  But that is based solely on unreliable observation.  The new therapist is nice.  She and Mae seem to get along well.  They meet twice a week for an hour, (well it is more like 50 min cause the therapist and the mother of the kid before Mae seem to be best friends and chit chat about shopping and crap forever while I am just standing there.  But whatever I'm not paying for this so I can't really complain.) 

So here's the thing.  When Max was a kid and I expressed my concern about his slightly delayed speech I hear lots of anecdotes about how so and so's nephew didn't talk at all until he was four then one day started talking in complete sentence.  (I mean I hear LOTS of these stories.)  So I think part of me figured that Mae would do the therapy for a few weeks then just snap out of it, or I suppose into it, and start talking.  Well, that obviously didn't happen.  We do see a lot of progress, but it all baby steps.  She says more, I would guess her word count is close to 100 now, and I do think she comprehends more.  Right now we are working on getting her to say the ends of words.  She only starts words like saying, Ba instead of Bath.  We have to defer a lot from context.  I have given up on the snap out of it dream.  We also had Mae tested for developmental therapy.  Unlike the speech evaluation I had to stay for the entire hour and a half session.  I watched the therapist talk to Mae and play with her.  Had I not had Spike and Max to deal with, (cause I didn't know I would be staying,) it would have been very interesting.  It would seem that Mae will also qualify for developmental therapy once a week.  I haven't seen the official write up yet, but the gist I got from the therapist is that Mae is developing just fine, except where her communication and speech are concerned.  So you'd think that would just mean sticking with the speech, but hey they come to your house for this and I figure this will only enhance the work we do with the speech therapist. 

Funny enough the physical therapist walked past Mae in session a few weeks ago and was concerned about her walking and sitting.  We had noticed that she was a bit pigeon toed, but when she had her 2 year check up with the doctor, we were advised she'd grow out of it.  Well it would seem not.  So she will be evaluated for that also completing the trifecta.

So how do I feel about all this?  Well my first thought is obviously that I just want to do what will help my kid.  We so badly want to communicate with her.  One of the questions the developmental therapist asked me during the evaluation almost got me to tears.  She asked if Mae would describe to me how she felt or if she would tell me when she didn't feel well?  I hadn't put it together that she was supposed to be doing that yet.  She just cries when she doesn't feel well.  I guess I sometimes ignore her developmental milestones cause I just lump her behavior off as younger then Max.  I want so badly to know what is wrong with her when she is ill.  A few nights ago some friends were remarking on how their kids talk in their sleep.  One boy will call out, "horsey," and giggle.  While I am aware this isn't something all kids do, I wish I knew more about what was going on in Mae's mind. 

Do I feel that my kid is not smart?  Wow, that looks bad to type.  But here's the thing- everyone was subconsciously asking that question in their heads.  No, Mae is smart, and not in a "special" way, and I am not in denial.  I don't have a problem with all these things, cause I did most of them myself, (don't think I don't know you're all thinking "well that explains a lot.")  I had to wear corrective shoes as a baby, and I also took speech in elementary school.  I don't see Mae's struggles as a mental defect, but more as a really good potential essay for colleges about overcoming learning disabilities.  Ha Ha we already have a leg up on the competition!  Will she be in the Blue Birds reading group?  I have no idea.  Maybe this will all be resolved before she even gets to school, or maybe it will be something we have to work on for a long time.  I'm okay with either.  Max can't read yet, and that's fine by me.  I figure learning to read will give him something to do in Kindergarten.  If I had a nickel for every person who has told me their kid was bored in Kindergarten, well I would use them all to pelt at the obnoxious parents.  (Any person who is bored doesn't have a good enough imagination.)  Maybe my kids will be geniuses, maybe not, I don't know.  I do know that they will be loved, taught the Gospel of Jesus Christ, educated, and hopefully they will know that the most important thing they can do in life is not sit through a green arrow.

5 comments:

Sarah R said...

I loved reading your thoughts in this post. I feel very confident that she will be just fine, this is what early intervention is for, and her little brain is still developing. Good for you for having the humility to allow her to be tested and receive the services. It's not an easy thing, but the sooner, the better. Trust me, for all those stories you've heard of kids who magically got better, there are just as many who didn't but it didn't get caught until 2nd or 3rd grade.

Anonymous said...

This post was very poignant to read because I was just telling someone today how I feel like I am finally getting a better window into Addison's head now that she can talk more. 18-22 months was just a hot mess for us because it seemed like all she could communicate to me was "I hate you. Don't touch me," followed by me weeping on the floor and complaining to Neal about how Addison hit me again.

I may have written about this before when you were first talking about speech therapy, but Mae is truly one of the lucky ones since you guys are aware and active in trying to get her help. I have a friend whose son qualifies for some speech therapy through the school district, but at said therapy, she has been told that he needs a neurologic and psychiatric evaluation because he is atypical, even for the kids they see. Well, her husband is just dead-set against it -- she says, it's a pride thing. He could barely accept that his son needed speech therapy and he is totally unwilling to go any further. Which is just sad because early intervention can help with so many things. I realize that his dad just probably has his own issues (he is an older father, only having had his son at age 50 -- I don't know if that plays a role but I think his wife thinks it does because he waited so long for a son and he is not quite the son he might have hoped for thus far) and is not trying to harm his son, but I just can't help feeling sad for their little guy.

Meg said...

"only boring people get bored" -Lynn Lawrence (circa every summer of my childhood and I love her for it).
I've recently become aware that at some point in parenting in the last 2 years it suddenly became not ok to not have little geniuses. I get email updates on my friend who boasts of her 5 month old turning pages in books and how the doctors have already told her this is an indication that he will be an excellent reader. I'm calling bull crap. He'll know he is loved because he was read to, that's what you can take from his brilliant page turning skills. And maybe he WILL become and excellent reader because of the countless hours his mother spends reading to him--we all know that is an obvious help---but I just don't think it is fair to decide what a child will be like in 5 years because of one thing he can or cannot do at 5 months old.
I think it is totally ok to not be raising the next rocket scientist, harvard grad, or president of the us. Right now, our goal as parents is to raise our children to be the next follower of Christ--and whatever else they decide to do with their future and gifts isn't up to us to decide. Good for you for recognizing that.
T
Oh, and the other thing I've learned in the last 2 years is that people who tell everyone that their kids are bored at school are the parents of children who just got into trouble at school. But it wasn't their fault, you know, they just bored.
great update on Mae.

Liz said...

thank you, meg!! my thoughts exactly! my favorite is actually when people exclaim in wonder over two year olds that are "reading" and i just want to comment, yeah, that's actually not normal and a red flag for other things going on. developing normally but delayed is so much easier to tackle than developing abnormally or out of order!

i was so paranoid because i felt like all the other parents' kids were reading BEFORE kindergarten. meg wasn't at all and so i will sing the praises of working hard in kindergarten and preK for years to come! Meg was always so precocious though that i also have secret anxiety for my "average" Lulu. sigh. no one told us about this part!

you are doing everything right for Mae! i'm thrilled that she's making progress-100 words is AWESOME!!!! and if developmental therapy is also warranted, it will only build upon what speech and you and Jeff are doing for her! thanks for the update.

Jill T said...

Wow, I really appreciated this. I used to work with kids with special needs because my nephew has autism and I learned to not be scared of delays. I'm excited for you guys and that she is showing progress! That was always the hardest part at school, was when we were stagnant with the kids.

Thanks for reminding me of what it is to be a good mom too - just love and effort.
-jill